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Tuberous sclerosis complex guidelines, diagnosis, treatment options, and images at Epocrates Online, the leading provider of drug and disease decision support tools.
23 Sep 2013 Silver Spring, MD—Today, the Tuberous Sclerosis Alliance (TS Alliance) formally announced newly updated clinical consensus guidelines for the diagnosis, surveillance and management of tuberous It causes tumors to form in vital organs, primarily the brain, heart, kidneys, skin, eyes, liver and lungs.
The conference was supported by generous sponsors who donated funds to the Tuberous Sclerosis Alliance without playing a role in the planning or having a presence at the conference or any influence on the resulting recommendations: the Rothberg Institute for Childhood Diseases, Novartis Pharmaceuticals, Sandra
26 Aug 2015 Clinical manifestations of TSC can occur at any age, thereby making the diagnosis difficult. No typical disease presentation is known, and the clinical presentation usually differs between pediatric and adult patients. Furthermore, variable penetrance of the genetic mutation causes a range of disease
The TS Alliance is dedicated to finding a cure for tuberous sclerosis complex, while improving the lives of those affected.
The updated consensus recommendations for clinical surveillance and management in tuberous sclerosis complex are summarized here. In 2011, the International Tuberous Sclerosis Complex Consensus Conference was organized and sponsored by the Tuberous Sclerosis Alliance, a nonprofit patient advocacy group
10 Aug 2016 The authors acknowledge the TS Alliance for sponsoring the Consensus Conference and preceding literature review, which contributed to the findings reported. Novartis was one of the sponsors of the conference, but they did not participate in the conference or play a role in defining the recommendations.
In September 2013, the Tuberous Sclerosis Alliance (TS Alliance) formally announced newly updated. Tuberous Sclerosis Complex (TSC) Clinical Consensus Guidelines. Healthcare TSC is a genetic disorder that causes tumors to form on vital organs and is the leading genetic cause of epilepsy. The diverse and varied
Healthcare professionals from around the world with expertise managing TSC met in June 2012 to update guidelines for the diagnosis, surveillance and management of TSC. The consensus reached as The duration and frequency of EEG should be determined by clinical need rather than set or defined ages or intervals.
Treatment Guidelines. The following table provides guidelines to help you and your loved one manage the treatment of TSC. Additional information for your physician is available here.

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March 2018